So as the title suggests, I am flared up. I have been for about a week now. The only difference this time is this: I keep going. For example yesterday. Yesterday my son and I rode our bikes up to the Yogurt shop on the corner. It’s approximately 1 block away. I hurt before, during, and definitely after. BUT I still enjoyed my time with my son. This is what I mean by learning to live life with an incurable condition: Even though it hurts, I can’t spend my LIFE in bed. I am also now at that point where I am taking the minimum of my pain medication, yesterday I probably could have taken many more it hurt so badly, to control my flare ups. I still have my goal of being 100%; but at least for now I can say I am headed in the right direction, and should I never make it to 100%, I can at least say I got out of bed and fought hard.
My stimulator helps quite a bit. However, as those with RSD/CRPS know, when the pain kicks into overdrive, not only are you in extreme pain, but your whole body reacts to it. I may be keeping myself moving, but it goes very slowly.
As for the yogurt trip, it was great. As he, my son, gets older, his friendships with other people grow exponentially. I am at this point slowly pushed out of the loop. So I really am doing what I can to secure my time with him, and to make it special when I do.
On another note, he is going back to public school. He goes back this September. I am heartbroken, but what can I do? I realize in the homeschooling community that I would hear: “You’re his mom, you can make him stay home.” But at what cost? His dad and I have prided ourselves on allowing our son free will and free thinking. If I was to curb his free will by keeping him home, I could very well be curbing his free thinking.
Thank you for listening/reading. I would like to start a new thing here. TO ALL MY READERS AND NEWCOMERS: I would love to tell of other peoples stories so that the HUGE RSD/CRPS community can see what others are going through. So please, should you feel compelled, SUBMIT YOUR STORY. Let me know 1. How you acquired RSD/CRPS; 2. What treatments you have received; 3. What helps you make it out of bed and into the day?
Hugs.
