Sufferer Of RSD











{August 18, 2008}   Back to school (my son)

I just read a post about someone discussing their “joy” in sending their child to school for the first time this year. My son is going back to school this year. He will be in the 5th grade. I AM NOT JOYED AND EXCITED ABOUT THIS. I cannot homeschool my son because most of the time I either can’t think or wake up to teach him. I also cannot get him out of the house to go do exciting and educational things. The pain keeps me from scheduling play dates and fun things because I NEVER know when it will be too painful to drive or take him out. We used to take the trolley around San Diego, visit Farmer’s Markets, and have lunch at Horton Plaza.

He’s going back and I am VERY unhappy about it. I am worried about how things will go. I am hoping that this school system is better than the last one he was in.

I think parents, and companies, need to have shorter work days. I also think schools should be shortened. I don’t think schools should have so much time with our children. Kids are missing out on the parenting, and the parent/child, connection they each deserve. Parents getting EXCITED to see their kids watched by someone else for up to 6 hours a day is sad. We should all cherish our children while they are still in our care, cause one day they grow up and we no longer get that time with them. Now, I am not saying that a break is not needed every now and then, but DAILY? for 6 hours a day? AND, don’t they give you a break when they come home from school and then go out to play with their friends (when they are old enough of course)?

No two days are alike for me. I am going to miss him during the day, that at least will be constant.

Okay, well there is my rant for the day.



{August 14, 2008}  

Hoping that by taking my Trazadone again, I will get the sleep that I deserve.



{August 10, 2008}  

Last night was SO wonderful, however, I am paying for it today. I am gonna let my muscle relaxer work and take a nap.



{August 10, 2008}   Jennifer’s Poker Tourney - Phoenix

For those in the Phoenix area, or anyone interested:

Tourney is at Temple Chai which is in Phoenix on Tatum and Greenway.

August 24th at 6:30pm.

$120 buy in –Prizes include cash for top 10 players and extra prizes like Suns Tickets and Restaurant Gift Cards etc…

Details from Scott:

I would like to invite everyone to come to our first fund raising poker tournament to help Jennifer.
If we can get 100 people, we will have a $5,000 prize pool for the final 9 places.
In addition we are working on getting some great addition prizes.
So, come on out and have some fun–all for a good cause.
Everyone can come! Please tell your friends:
Buy in is $120.00
$50 goes to prize pool
$20 goes to expenses to run the vent
$50 goes to Jennifer’s fund!

They can RSVP by emailing me, Scott, or calling:

sjleader@gmail.com

310-721-8187

Please pass on the details to friends, families, and other blogs. :)



{August 8, 2008}   Inflammation

So I was able to go and see my acupuncturist. I definitely needed it. She informed me that the area surrounding my SCS battery was inflamed, and I am inflamed along the right side of my lead incision. So I am calling my PM to find out if I should be concerned. What do you think? Any experience? Does/Could a body reject such a device that it would cause problems surrounding it? How come it took so long for my body to not like it? Was it just building up to this point?

With this horrible condition comes a lot of patience and learning. I have a limit, I have learned it. I also know that my flare ups don’t care what I am thinking, they want to come, they will. My acupuncturist told me not to wait so long to see her though. I told her I didn’t have any money to see her, it’s hard when you live off your mom. She said she will work with me, but that I must get not allow myself to go downhill so much before I come to see her.

I like my acupuncture appts. I get a decent amount of relief from them. They help me through my flare ups. Which, for those of you with RSD/CRPS, is a blessing in itself.

I also have appts with a chiropractor and a physical therapist. I have decided to take my own advice. I leave people messages who are new to RSD and tell them “aggressive treatment” “alternative medicine (chiropractor, acupuncture), physical therapy, pain management” are all good to have. Well I know for a fact that because of the leads in my spine and not being able to bend, or twist, I definitely need to be adjusted, so chiropractor here I come. Then the acupuncture can help with the inner workings. Last but not least the physical therapy can help make me stronger. (The last time I tried PT it hurt so badly.) Let’s pray that I will be able to endure the process and come out stronger. Cause at this point I am not strong. It hurts to be strong.

My doctor stated at one point that I will need indefinite physical therapy. I think I am scared to get it. (Previous experience) I would like to try water therapy again, however, they are located too far for me to drive to, and I can’t afford that either. (Plus they were already so kind to me) The drive alone would surely hurt me.

On a side note: Our garden is growing beautifully. Our corn, however, got struck down by a tree branch falling on most of them. We managed to save 2 plants. Our watermelon looks as though it’s done and doesn’t want to grow anymore. (Any advice would be great, the leave are just wilting everywhere) Our grape tree is happy in its spot. We have just recently planted beans (cool). Our strawberry, which we thought was a goner, is in fact flowering now. Our tomatoes are many. MANY MANY green tomatoes. Some are starting to turn, others are just staying green. HMPH. The onion should be done in the next month or two. The bell pepper plant is giving us 2 right now. The jalapeno plant is giving us an array of colors. (It’s fun watching those change color) My banana pepper plant is struggling (we are getting another one next year - I love banana peppers - they make pepperchinis). Our morning glories are flowering finally!!! One is giving off a deep dark purple (always the model for the tattoo I wanted - however, no more - in fact even my doctor advised against me getting tattoos, it could cause me more problems), the other morning glory plant is giving off a light purple. We also planted in between those multi colored morning glories. Our fence will be full in no time!!!

Enough for now. I will post and let everyone know what my doctor has to say about my battery and leads.



{August 6, 2008}  

I hate hurting as badly as I do today.



{August 4, 2008}  

I am a SEXY bitch today!!! :)



{August 2, 2008}  

what is your opinion of Vonage? I am sick of feeling like I am being overcharged just to make a phone call - OPINIONS please!!!



{August 1, 2008}  

MMM, homegrown tomatoes are WONDERFUL!!!



{July 28, 2008}  

I REALLY DISLIKE LITTLE KIDS AND THEIR DRAMA - C’MON AT WHAT POINT WILL STUPID PEOPLE GROW UP??



et cetera